Your Data Matter to us
Your Data Matters to the NHS
Information about your health and care helps us to improve your individual care, speed up diagnosis, plan your local services and research new treatments. The NHS is committed to keeping patient information safe and always being clear about how it is used.
How your data is used
Information about your individual care such as treatment and diagnoses is collected about you whenever you use health and care services. It is also used to help us and other organisations for research and planning such as research into new treatments, deciding where to put GP clinics and planning for the number of doctors and nurses in your local hospital. It is only used in this way when there is a clear legal basis to use the information to help improve health and care for you, your family and future generations.
Wherever possible we try to use data that does not identify you, but sometimes it is necessary to use your confidential patient information.
You have a choice
You do not need to do anything if you are happy about how your information is used. If you do not want your confidential patient information to be used for research and planning, you can choose to opt out securely online or through a telephone service. You can change your mind about your choice at any time.
Will choosing this opt-out affect your care and treatment?
No, choosing to opt out will not affect how information is used to support your care and treatment. You will still be invited for screening services, such as screenings for bowel cancer.
What do you need to do?
If you are happy for your confidential patient information to be used for research and planning, you do not need to do anything.
To find out more about the benefits of data sharing, how data is protected, or to make/change your opt-out choice visit www.nhs.uk/your-nhs-data-matters
Download a copy of the patient leaflet
General Data protection Regulation (GDPR)
General Practice Data for Planning and Research data collection (GPDPR)
GPDPR was due to start from 1 July 2021. The roll-out was initially pushed back to September 2021 and has now been paused to allow for further work to strengthen the plan. DHSC are continuing to work on the infrastructure, and communication for the project, but are not setting a specific start date for the collection of data. This will start only when the following is in place:
the ability to delete data if patients choose to opt-out of sharing their GP data with NHS Digital, even if this is after their data has been uploaded;
the backlog of opt-outs has been fully cleared;
a Trusted Research Environment has been developed and implemented in NHS Digital;
patients have been made more aware of the scheme through a campaign of engagement and communication.